Sometimes in life we see someone, something and we have sympathy for a total stranger, we connect on a level, if it is just for a few minutes, that we rarely connect with. I’m a believer that often we miss these time. We are too busy avoiding strangers instead of making connections. I’ve very guiltyContinue reading “What do you say?”
Author Archives: takulcz
More than Cardboard
I have many passions in life, one of the strongest passions I have are baseball cards. For many a baseball card is just a piece of cardboard with a player’s image on it. For me, it’s much more than that. Baseball cards are a great way to connect to a favorite player, connect to aContinue reading “More than Cardboard”
Our child brought me back to my career goal.
This week I took a huge step to achieving of of my goals. I’m 41, this is a goal I had as a young child. A goal that I really didn’t think I would accomplish, that all changed in 2016, just 4 years ago. In most every other blog post I talk about our children,Continue reading “Our child brought me back to my career goal.”
Fall is in the air!
Fall, my favorite time of the year. Up until 1 year ago it’s always been a huge transition time for me. Growing up fall marks back to school, the transition from the summer fun. I always enjoyed summer vacation. Growing up our family always took 1 big road trip every year. We went to placesContinue reading “Fall is in the air!”
He’ll be fine.
February of 2017 we left Children’s Hospital in Madison, knowing we would be back. Well, we are coming back this week! In February of 2020 we realized Malix needed his tonsil’s removed. They were really swollen and apparently it’s common for a child with Down Syndrome to need them removed. Covid came and all “elective”Continue reading “He’ll be fine.”
Like a Turtle
I am not a patient person, not at all. I acknowledge this as one of my weaknesses, but frankly I think it’s a strength. Malix is not patient either, and after his heart surgery on January 25, 2017, that is just fine. Our journey, we last left off when Malix returned from surgery. Late afternoonContinue reading “Like a Turtle”
Hi Again, I’m Tom
It’s been a while (2 months) since I’ve updated my blog on here. So much is going on in our crazy world and frankly, I just thought you had more to worry about in your life than to hear of our journey. In the past week, 4 friends have asked me why I stopped. ThatContinue reading “Hi Again, I’m Tom”
The Day, The Miracle.
Thank you for checking out my blog. Up to this point I have written about our son Malix’s prebirth, birth and now ready for heart surgery. This takes you to THE DAY. The day is January 25, 2017. It’s a snowy Wednesday in Madison, Wisconsin. I am your ordinary father of 4 kids. Lucky inContinue reading “The Day, The Miracle.”
Right now is my action time, soon will be yours.
“Would a Heart Transplant be a better option.” Is all I asked. “Malix does not qualify for a Heart Transplant.” Dr. A responded. “If Malix did not have Down Syndrome, would we be looking at a Heart Transplant.” I asked. The answer shocked me. Imagine this, the time December 2017. We are in a meeting,Continue reading “Right now is my action time, soon will be yours.”
We Are The Lucky Few!
So far this blog has been in order of our journey with Malix. I am going to go a little off track. In August of 2016 we had a family over for dinner, the last few minutes of the night changed how we interacted with other families that have a child with Down Syndrome, untilContinue reading “We Are The Lucky Few!”
