I don’t like birthdays. Never have, never thought I would. I like to celebrate accomplishments. Celebrate doing something, achieving something. I’ve always thought celebrating a birthday was kind of weird. I mean, everyone has one, what’s so special about having one. I dislike birthday’s so much that if there is something I want and myContinue reading “This One is Different, Happy Birthday to Me!”
Category Archives: Uncategorized
What do you say?
Sometimes in life we see someone, something and we have sympathy for a total stranger, we connect on a level, if it is just for a few minutes, that we rarely connect with. I’m a believer that often we miss these time. We are too busy avoiding strangers instead of making connections. I’ve very guiltyContinue reading “What do you say?”
Our child brought me back to my career goal.
This week I took a huge step to achieving of of my goals. I’m 41, this is a goal I had as a young child. A goal that I really didn’t think I would accomplish, that all changed in 2016, just 4 years ago. In most every other blog post I talk about our children,Continue reading “Our child brought me back to my career goal.”
He’ll be fine.
February of 2017 we left Children’s Hospital in Madison, knowing we would be back. Well, we are coming back this week! In February of 2020 we realized Malix needed his tonsil’s removed. They were really swollen and apparently it’s common for a child with Down Syndrome to need them removed. Covid came and all “elective”Continue reading “He’ll be fine.”
Like a Turtle
I am not a patient person, not at all. I acknowledge this as one of my weaknesses, but frankly I think it’s a strength. Malix is not patient either, and after his heart surgery on January 25, 2017, that is just fine. Our journey, we last left off when Malix returned from surgery. Late afternoonContinue reading “Like a Turtle”
Hi Again, I’m Tom
It’s been a while (2 months) since I’ve updated my blog on here. So much is going on in our crazy world and frankly, I just thought you had more to worry about in your life than to hear of our journey. In the past week, 4 friends have asked me why I stopped. ThatContinue reading “Hi Again, I’m Tom”
Right now is my action time, soon will be yours.
“Would a Heart Transplant be a better option.” Is all I asked. “Malix does not qualify for a Heart Transplant.” Dr. A responded. “If Malix did not have Down Syndrome, would we be looking at a Heart Transplant.” I asked. The answer shocked me. Imagine this, the time December 2017. We are in a meeting,Continue reading “Right now is my action time, soon will be yours.”
We Are The Lucky Few!
So far this blog has been in order of our journey with Malix. I am going to go a little off track. In August of 2016 we had a family over for dinner, the last few minutes of the night changed how we interacted with other families that have a child with Down Syndrome, untilContinue reading “We Are The Lucky Few!”
3 choices, 1 big decision.
Let’s get caught up. Malix has been in this world for 24 hours, Cubs have won the first World Series in 108 years and now we are off to the NICU. My memories of the NICU in Madison after birth are faint. All I remember is waiting, waiting for bad news. The funny thing is,Continue reading “3 choices, 1 big decision.”
He’s Perfect, he has Down Syndrome, but he’s perfect.
Thank you for reading my blog. This past week I’ve been shock by a couple of you who have asked when the next one is coming, the truth is I had a little bit of writers block. Telling a story that one lived should not give writers block, but determining how to tell it importantContinue reading “He’s Perfect, he has Down Syndrome, but he’s perfect.”
