“Would a Heart Transplant be a better option.” Is all I asked. “Malix does not qualify for a Heart Transplant.” Dr. A responded. “If Malix did not have Down Syndrome, would we be looking at a Heart Transplant.” I asked. The answer shocked me. Imagine this, the time December 2017. We are in a meeting,Continue reading “Right now is my action time, soon will be yours.”
Author Archives: takulcz
We Are The Lucky Few!
So far this blog has been in order of our journey with Malix. I am going to go a little off track. In August of 2016 we had a family over for dinner, the last few minutes of the night changed how we interacted with other families that have a child with Down Syndrome, untilContinue reading “We Are The Lucky Few!”
3 choices, 1 big decision.
Let’s get caught up. Malix has been in this world for 24 hours, Cubs have won the first World Series in 108 years and now we are off to the NICU. My memories of the NICU in Madison after birth are faint. All I remember is waiting, waiting for bad news. The funny thing is,Continue reading “3 choices, 1 big decision.”
He’s Perfect, he has Down Syndrome, but he’s perfect.
Thank you for reading my blog. This past week I’ve been shock by a couple of you who have asked when the next one is coming, the truth is I had a little bit of writers block. Telling a story that one lived should not give writers block, but determining how to tell it importantContinue reading “He’s Perfect, he has Down Syndrome, but he’s perfect.”
But it’s the World Series!
Thank you for checking out my blog of our adventure! The previous entry left going into to fall of 2016. Quick Recap: Baby is going to be a boy, Trent is going into 2nd grade with a broken leg, Lydia is going into 1st grade and Matea is entering 4K. All in the School DistrictContinue reading “But it’s the World Series!”
It’s a Boy! Congratulations??
Summer of 2016 We were expecting our 4th Child. With our first 3 children, we never did a gender reveal party. We wanted to do gender reveal party for number 4 in our new house in Fort Atkinson, WI. We moved a few months earlier, but thought this was a good time to have familyContinue reading “It’s a Boy! Congratulations??”
God Gives you more than YOU can handle!
This week in a grocery store, I overheard someone say to another “God doesn’t give you more than you can handle.” This reminded of a Facebook Post I wrote February 11, 2017. After writing this, I had some very in depth conversations with others. Funny how I thought at the time we had a hugeContinue reading “God Gives you more than YOU can handle!”
The Call
August of 2016. We have been in our house in Fort Atkinson for a few months. We knew our unborn child had some heart “issues” and were made aware that there is a chance this issue was connected to him having Down Syndrome. I was in complete denial that could even be a possibility. IContinue reading “The Call”
Everything is going to be fine, what if it is not?
July of 2016. We just moved into our “final” house in Fort Atkinson, WI. It is a great house, 3 bedrooms for the kids, finished basement, awesome backyard. Michelle was pregnant with our fourth. We took the 3 kids to the ultrasound as a celebration to “see” the baby and to get excited! It wasContinue reading “Everything is going to be fine, what if it is not?”
Why Now?
Why start a blog? Why do it now? Easy, there is no time like the present. At the risk of quoting myself: “To mean to do something, without action, is meaningless.” This is a line that came to me while I was preparing my mother’s funeral eulogy, for her funeral on May 1st of 2019.Continue reading “Why Now?”
Malix 