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Like a Turtle

I am not a patient person, not at all. I acknowledge this as one of my weaknesses, but frankly I think it’s a strength. Malix is not patient either, and after his heart surgery on January 25, 2017, that is just fine. Our journey, we last left off when Malix returned from surgery. Late afternoonContinue reading “Like a Turtle”

Hi Again, I’m Tom

It’s been a while (2 months) since I’ve updated my blog on here. So much is going on in our crazy world and frankly, I just thought you had more to worry about in your life than to hear of our journey. In the past week, 4 friends have asked me why I stopped. ThatContinue reading “Hi Again, I’m Tom”

The Day, The Miracle.

Thank you for checking out my blog. Up to this point I have written about our son Malix’s prebirth, birth and now ready for heart surgery. This takes you to THE DAY. The day is January 25, 2017. It’s a snowy Wednesday in Madison, Wisconsin. I am your ordinary father of 4 kids. Lucky inContinue reading “The Day, The Miracle.”

Right now is my action time, soon will be yours.

“Would a Heart Transplant be a better option.” Is all I asked. “Malix does not qualify for a Heart Transplant.” Dr. A responded. “If Malix did not have Down Syndrome, would we be looking at a Heart Transplant.” I asked. The answer shocked me. Imagine this, the time December 2017. We are in a meeting,Continue reading “Right now is my action time, soon will be yours.”

We Are The Lucky Few!

So far this blog has been in order of our journey with Malix. I am going to go a little off track. In August of 2016 we had a family over for dinner, the last few minutes of the night changed how we interacted with other families that have a child with Down Syndrome, untilContinue reading “We Are The Lucky Few!”

3 choices, 1 big decision.

Let’s get caught up. Malix has been in this world for 24 hours, Cubs have won the first World Series in 108 years and now we are off to the NICU. My memories of the NICU in Madison after birth are faint. All I remember is waiting, waiting for bad news. The funny thing is,Continue reading “3 choices, 1 big decision.”

He’s Perfect, he has Down Syndrome, but he’s perfect.

Thank you for reading my blog. This past week I’ve been shock by a couple of you who have asked when the next one is coming, the truth is I had a little bit of writers block. Telling a story that one lived should not give writers block, but determining how to tell it importantContinue reading “He’s Perfect, he has Down Syndrome, but he’s perfect.”

But it’s the World Series!

Thank you for checking out my blog of our adventure! The previous entry left going into to fall of 2016. Quick Recap: Baby is going to be a boy, Trent is going into 2nd grade with a broken leg, Lydia is going into 1st grade and Matea is entering 4K. All in the School DistrictContinue reading “But it’s the World Series!”

It’s a Boy! Congratulations??

Summer of 2016 We were expecting our 4th Child. With our first 3 children, we never did a gender reveal party. We wanted to do gender reveal party for number 4 in our new house in Fort Atkinson, WI. We moved a few months earlier, but thought this was a good time to have familyContinue reading “It’s a Boy! Congratulations??”

God Gives you more than YOU can handle!

This week in a grocery store, I overheard someone say to another “God doesn’t give you more than you can handle.” This reminded of a Facebook Post I wrote February 11, 2017. After writing this, I had some very in depth conversations with others. Funny how I thought at the time we had a hugeContinue reading “God Gives you more than YOU can handle!”