February of 2017 we left Children’s Hospital in Madison, knowing we would be back. Well, we are coming back this week!
In February of 2020 we realized Malix needed his tonsil’s removed. They were really swollen and apparently it’s common for a child with Down Syndrome to need them removed. Covid came and all “elective” surgery procedures were put on hold. They are back!
For Malix to be able to have surgery he needed clearance from his Heart Doctor. We have always anticipated a second surgery for his heart. The surgery would not be nearly as risky as his first. Great news. The bad news is that after his second surgery he would be on blood thinners the rest of his life. Bad news. Apparently being on blood thinners for many years has side effects… kidneys… etc. I’m not going to pretend I know all, but you get the picture.
Michelle took Malix to our Heart Doctor for the full check up. I decided to stay home and work. I wish I went. Well, Malix did great. He is cleared for surgery, but the miracle is his heart’s gap that needed surgery is closing. That means that the likelihood of surgery went from a certain to likely will never need it!!!
The day after learning this, something hit me. It hit me hard. My mother passed away last spring. Before she passed, she sometimes would say things as if they were fact. It really bothered me, because “how could she know.” We got into many discussions about Malix’s second heart surgery. Anytime it came up, she would tell me with 100% certainty that Malix would not need another surgery, no questions asked. I always thought it was a tatic to make me not worry about it. So, of course, I would argue with her, but she was so certain.
Well, mom was right. She was a strong believer in Christ. I know she prayed like crazy for all of us, but especially Malix. That kid is so lucky to have awesome grandparents, even if he’ll never get to see one of them again on this earth. Love you mom, thank you for looking out for us like you always do!